I-RAP
Improving Recognition and Understanding of Autism and Personality Disorder
About Us
1. How did I-RAP come about
Highlights:
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The I-RAP team won some funding from the McPin Foundation on behalf of Words That Carry On, to conduct some research on the relationship between autism and personality disorder, in memory of Lindsay Riddoch.
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This topic had been identified as a priority by a group of people with lived and/or clinical experience of these diagnoses.
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2. The I-RAP team
Highlights:
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Our team span academic, clinical and lived experience expertise across autism and personality disorder.
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3. Co-production
Highlights:
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People with lived experience of autism and/or personality disorder have shaped the project from start to finish, including holding leadership roles in the project and carrying out key research activities.
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These include our co-lead Jennie Parker and our co-researcher Eloise Stark, who are both autistic researchers with lived experience of personality disorder diagnosis, and our panel of lived experience advisors.
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4. Our Funders
Highlights:
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The project is funded by the McPin Foundation on behalf of Words That Carry On.
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5. Lindsay Riddoch
Lindsay was highly academically talented, gaining a First class degree in History from SOAS. Campaigning and activism were at the heart of both her personal life and her career, which spanned working with politicians, the digital activism platform 38 Degrees, the NHS, and the mental health charity Rethink. The issues Lindsay passionately and effectively campaigned on included the environment, climate change, political and police accountability, and mental health.
Her activism on mental health began as a teenager, when she launched her own campaign, called “1,000 voices” – an online platform where young people could share their experiences of mental health issues. She won support for this from TV star Stephen Fry, and was featured in a story in the Edinburgh Evening News in September 2011.
In her later career she set up a working group to enable mental health service users and carers to voice their ideas for change, and carried out work aimed at building more effective services and support for people with mental health needs.
All the time, though, she was wrestling with serious mental health problems of her own. In December 2017, following 18 months in mental health hospitals, Lindsay took her own life on the eve of her 25th birthday, ending her long and difficult struggle with serious and poorly understood mental health problems. Whilst Lindsay never obtained a full and clear diagnosis, we know it included aspects of personality disorder and autism.
Words That Carry On was set up in memory of Lindsay and inspired by her life, her poetry and her passion for ensuring that people who lived with mental health problems had their voices heard. For more information on Lindsay’s life and Words That Carry On, please visit Words That Carry On
7. Acknowledgements
Thank you!
The I-RAP team would like to offer heartfelt thanks to our supporters, advisors and study participants for their time and thought in making this research possible.
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